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From: Document360 <jakob@saudades.at>
To: <info@designerliving.com>
Subject: FiIes Awaiting Review (Ref ID: Designerliving; NIN: 9/25/2025;
 Amendment to Agreement;
 A1Q/#zS0#/7670dafd69a9d0bc88be51957a6243f28cc1d45e)
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</head><body lang=3D"EN-US" link=3D"blue" vlink=3D"purple" style=3D"word-wr=
ap:break-word"><div class=3D"WordSection1"><p class=3D"MsoNormal"><span sty=
le=3D"font-size:11.0pt">Hi Catherine, Do you know if we received this final=
 report? Thanks so much. Best, Marty<o:p></o:p></span></p><p class=3D"MsoNo=
rmal"><span style=3D"font-size:11.0pt"><o:p>&nbsp;</o:p></span></p><div sty=
le=3D"border:none;border-top:solid #B5C4DF 1.0pt;padding:3.0pt 0in 0in 0in"=
><p class=3D"MsoNormal"><b><span style=3D"font-family:&quot;Calibri&quot;,s=
ans-serif;color:black">From: </span></b><span style=3D"font-family:&quot;Ca=
libri&quot;,sans-serif;color:black">Marty &lt;mburke@cysteticmedicines.com&=
gt;<br><b>Date: </b>Tuesday, September 16, 2025 at 6:51=E2=80=AFAM<br><b>To=
: </b>Beth Shapiro Lavin &lt;beth@emilysentourage.org&gt;, Catherine Pelc &=
lt;cpelc@devprobiopharma.com&gt;, Daniele Tompkins &lt;dtompkins@devprobiop=
harma.com&gt;<br><b>Cc: </b>Catherine Strader &lt;cstrader@synergymedicines=
.com&gt;<br><b>Subject: </b>Re: Emily's Entourage Final Report for cystetic=
 Medicines<o:p></o:p></span></p></div><div><p class=3D"MsoNormal"><o:p>&nbs=
p;</o:p></p></div><p class=3D"MsoNormal"><span style=3D"font-size:11.0pt">H=
i Beth, Thanks so much for your email and sorry for the delay in responding=
. And thanks so much again for all your tremendous partnership on this stud=
y. &nbsp;We have finished our study, so yes, please go ahead and remove the=
 landing page. Sorry I am travelling this week, but I will reach out to Jon=
 SImansky about the payment, and I will also be back in touch soon regardin=
g the final report. Thanks again. Best, Marty <o:p></o:p></span></p><p clas=
s=3D"MsoNormal"><span style=3D"font-size:11.0pt"><o:p>&nbsp;</o:p></span></=
p><div style=3D"border:none;border-top:solid #B5C4DF 1.0pt;padding:3.0pt 0i=
n 0in 0in"><p class=3D"MsoNormal"><b><span style=3D"font-family:&quot;Calib=
ri&quot;,sans-serif;color:black">From: </span></b><span style=3D"font-famil=
y:&quot;Calibri&quot;,sans-serif;color:black">Beth Shapiro Lavin &lt;beth@e=
milysentourage.org&gt;<br><b>Date: </b>Tuesday, September 9, 2025 at 12:36=
=E2=80=AFPM<br><b>To: </b>Catherine Pelc &lt;cpelc@devprobiopharma.com&gt;,=
 Daniele Tompkins &lt;dtompkins@devprobiopharma.com&gt;, Marty &lt;mburke@c=
ysteticmedicines.com&gt;<br><b>Subject: </b>Re: Emily's Entourage Final Rep=
ort for cystetic Medicines<o:p></o:p></span></p></div><div><p class=3D"MsoN=
ormal"><o:p>&nbsp;</o:p></p></div><div><p class=3D"MsoNormal">Hi Marty, Cat=
hy and Daniele,&nbsp;<o:p></o:p></p><div><p class=3D"MsoNormal">Since I hav=
en=E2=80=99t received a response, I plan to remove the <a href=3D"https://g=
o.emilysentourage.org/cystetic-Medicines-CM001001" target=3D"_blank">landin=
g page for the cystetic study</a> in Australia from EE's Clinical Trial Con=
nect platform this week. If you=E2=80=99d like it to remain active, please =
let me know.<br><br>I also wanted to check in again on EE=E2=80=99s final p=
ayment -- hopefully it=E2=80=99s already in process, but if you need anythi=
ng from me to help move it forward, I=E2=80=99d be glad to assist.<o:p></o:=
p></p></div><div><p class=3D"MsoNormal"><o:p>&nbsp;</o:p></p></div><div><p =
class=3D"MsoNormal">Thanks,<o:p></o:p></p></div><div><p class=3D"MsoNormal"=
>Beth&nbsp;<o:p></o:p></p></div></div><p class=3D"MsoNormal"><o:p>&nbsp;</o=
:p></p><div><div><p class=3D"MsoNormal">On Thu, Aug 28, 2025 at 4:56<span s=
tyle=3D"font-family:&quot;Arial&quot;,sans-serif">=E2=80=AF</span>PM Beth S=
hapiro Lavin &lt;<a href=3D"mailto:beth@emilysentourage.org" target=3D"_bla=
nk">beth@emilysentourage.org</a>&gt; wrote:<o:p></o:p></p></div><blockquote=
 style=3D"border:none;border-left:solid #CCCCCC 1.0pt;padding:0in 0in 0in 6=
.0pt;margin-left:4.8pt;margin-top:5.0pt;margin-right:0in;margin-bottom:5.0p=
t"><div><div><p class=3D"MsoNormal">Hi Marty, Cathy and Danielle,&nbsp;<o:p=
></o:p></p></div><div><p class=3D"MsoNormal">I wanted to follow up to confi=
rm you were&nbsp;able to view the final report and to see if there are any =
questions as we close things out.<br><br>Additionally, please let me know w=
hether you=E2=80=99d like us to keep the landing page active or take it dow=
n.<br><br>I also sent the final invoice to Jonathan Simansky &lt;<a href=3D=
"mailto:jsimansky@deerfield.com" target=3D"_blank">jsimansky@deerfield.com<=
/a>&gt;&nbsp;but have not yet received a response, so I=E2=80=99d appreciat=
e it if you could confirm that it reached the right place.<br><br>Thank you=
 again for your partnership,<o:p></o:p></p></div><div><p class=3D"MsoNormal=
">Beth&nbsp;<o:p></o:p></p></div><div><p class=3D"MsoNormal"><o:p>&nbsp;</o=
:p></p></div><div><div><p class=3D"MsoNormal">On Thu, Aug 14, 2025 at 9:45<=
span style=3D"font-family:&quot;Arial&quot;,sans-serif">=E2=80=AF</span>AM =
Beth Shapiro Lavin &lt;<a href=3D"mailto:beth@emilysentourage.org" target=
=3D"_blank">beth@emilysentourage.org</a>&gt; wrote:<o:p></o:p></p></div><bl=
ockquote style=3D"border:none;border-left:solid #CCCCCC 1.0pt;padding:0in 0=
in 0in 6.0pt;margin-left:4.8pt;margin-top:5.0pt;margin-right:0in;margin-bot=
tom:5.0pt"><div><div><p style=3D"margin:0in"><span style=3D"font-family:&qu=
ot;Arial&quot;,sans-serif;color:black">Hi Marty, Cathy, and Daniele,</span>=
<span style=3D"font-family:&quot;Arial&quot;,sans-serif"><o:p></o:p></span>=
</p><p style=3D"margin:0in"><span style=3D"font-family:&quot;Arial&quot;,sa=
ns-serif;color:black">I=E2=80=99m pleased to share the final report on Emil=
y's Entourage's data registry and recruiting services for cystetic Medicine=
s in support of the CM001001 Study. I=E2=80=99d be happy to schedule a call=
 to walk through the report together and debrief, if that would be helpful.=
 Please let me know if your team has any questions.</span><span style=3D"fo=
nt-family:&quot;Arial&quot;,sans-serif"><o:p></o:p></span></p><p class=3D"M=
soNormal"><span style=3D"font-family:&quot;Arial&quot;,sans-serif"><o:p>&nb=
sp;</o:p></span></p><p style=3D"margin:0in"><span style=3D"font-family:&quo=
t;Arial&quot;,sans-serif;color:black">It=E2=80=99s been a pleasure working =
with cystetic and DevPro to support this study, especially as we piloted ou=
r international outreach in Australia. We=E2=80=99ve truly valued having yo=
u as a partner and collaborator. As we close out this phase of our work, he=
re are the remaining items:</span><span style=3D"font-family:&quot;Arial&qu=
ot;,sans-serif"><o:p></o:p></span></p><p class=3D"MsoNormal"><span style=3D=
"font-family:&quot;Arial&quot;,sans-serif"><o:p>&nbsp;</o:p></span></p><ol =
style=3D"margin-top:0in" start=3D"1" type=3D"1"><li class=3D"MsoNormal" sty=
le=3D"color:black;mso-list:l0 level1 lfo3;vertical-align:baseline;font-vari=
ant-numeric:normal;font-variant-east-asian:normal;font-variant-alternates:n=
ormal;white-space:pre-wrap"><span style=3D"font-family:&quot;Arial&quot;,sa=
ns-serif">Final Invoice: I=E2=80=99ll forward the final invoice for our ser=
vices under this engagement.<o:p></o:p></span></li></ol><p class=3D"MsoNorm=
al"><span style=3D"font-family:&quot;Arial&quot;,sans-serif"><o:p>&nbsp;</o=
:p></span></p><p class=3D"MsoNormal" style=3D"margin-left:.5in;text-indent:=
-.25in;mso-list:l3 level1 lfo6;vertical-align:baseline"><![if !supportLists=
]><span style=3D"font-family:&quot;Arial&quot;,sans-serif;color:black"><spa=
n style=3D"mso-list:Ignore">2.<span style=3D"font:7.0pt &quot;Times New Rom=
an&quot;">&nbsp;&nbsp;&nbsp; </span></span></span><![endif]><span style=3D"=
font-family:&quot;Arial&quot;,sans-serif;color:black">Landing Page: If recr=
uitment is still ongoing, we can keep the <a href=3D"https://go.emilysentou=
rage.org/cystetic-Medicines-CM001001" target=3D"_blank">landing page</a> li=
ve for passive recruitment. I can check in monthly for updates. I can also =
notify you of any interest we receive, and we are happy to make any referra=
ls if/where possible. <b>Please let me know if you=E2=80=99d like us to kee=
p it active at this time or archive it (take it down) at this time.&nbsp;</=
b><o:p></o:p></span></p><p class=3D"MsoNormal"><span style=3D"font-family:&=
quot;Arial&quot;,sans-serif"><o:p>&nbsp;</o:p></span></p><p class=3D"MsoNor=
mal" style=3D"margin-left:.5in;text-indent:-.25in;mso-list:l4 level1 lfo9;v=
ertical-align:baseline"><![if !supportLists]><span style=3D"font-family:&qu=
ot;Arial&quot;,sans-serif;color:black"><span style=3D"mso-list:Ignore">3.<s=
pan style=3D"font:7.0pt &quot;Times New Roman&quot;">&nbsp;&nbsp;&nbsp; </s=
pan></span></span><![endif]><span style=3D"font-family:&quot;Arial&quot;,sa=
ns-serif;color:black">Share-Back Reminder: Transparency and sharing informa=
tion back to our community is extremely important to EE. As outlined in our=
 contract, Section 8A. <i>=E2=80=9CThe Company agrees that, if the results =
of the Study are published, a summary thereof shall be made available to Em=
ily=E2=80=99s Entourage, to the extent permitted by the Company=E2=80=99s c=
opyright ownership, for dissemination within thirty (30) days of publicatio=
n.=E2=80=9D</i> We understand this may be far in the future, but if/when re=
sults are available, please email the summary to me and copy <a href=3D"mai=
lto:admin@emilysentourage.org" target=3D"_blank">admin@emilysentourage.org<=
/a> so we can ensure timely review and sharing with our community.<o:p></o:=
p></span></p><p class=3D"MsoNormal"><span style=3D"font-family:&quot;Arial&=
quot;,sans-serif"><o:p>&nbsp;</o:p></span></p><p style=3D"margin:0in"><span=
 style=3D"font-family:&quot;Arial&quot;,sans-serif;color:black">If there ar=
e future phases of this study or other projects that we can support using E=
E=E2=80=99s Clinical Trial Connect database, we would be honored to work to=
gether again.</span><span style=3D"font-family:&quot;Arial&quot;,sans-serif=
"><o:p></o:p></span></p><p style=3D"mso-margin-top-alt:0in;margin-right:0in=
;margin-bottom:12.0pt;margin-left:0in"><span style=3D"font-family:&quot;Ari=
al&quot;,sans-serif"><o:p>&nbsp;</o:p></span></p><p style=3D"margin:0in"><s=
pan style=3D"font-family:&quot;Arial&quot;,sans-serif;color:black">Thanks s=
o much,</span><span style=3D"font-family:&quot;Arial&quot;,sans-serif"><o:p=
></o:p></span></p><p style=3D"margin:0in"><span style=3D"font-family:&quot;=
Arial&quot;,sans-serif;color:black">Beth</span><span style=3D"font-family:&=
quot;Arial&quot;,sans-serif"><o:p></o:p></span></p><p class=3D"MsoNormal"><=
o:p>&nbsp;</o:p></p></div><div><p class=3D"MsoNormal"><o:p>&nbsp;</o:p></p>=
</div><p class=3D"MsoNormal"><span class=3D"gmailsignatureprefix">-- </span=
><o:p></o:p></p><div><div><p class=3D"MsoNormal"><span style=3D"border:soli=
d windowtext 1.0pt;padding:0in"><img border=3D"0" width=3D"420" height=3D"1=
09" style=3D"width:4.375in;height:1.1354in" id=3D"_x0000_i1027" src=3D"cid:=
~WRD0002.jpg" alt=3D"Image removed by sender."></span><o:p></o:p></p><div><=
div><p class=3D"MsoNormal"><b><i><span style=3D"color:#351C75">Fast Breakth=
roughs for Cystic Fibrosis!</span></i></b><o:p></o:p></p></div><div><p clas=
s=3D"MsoNormal"><o:p>&nbsp;</o:p></p></div><div><p class=3D"MsoNormal"><b><=
span style=3D"font-family:&quot;Arial&quot;,sans-serif;color:#351C75"><a hr=
ef=3D"https://www.emilysentourage.org/" target=3D"_blank"><span style=3D"co=
lor:#1155CC">www.EmilysEntourage.org</span></a></span></b><o:p></o:p></p></=
div><div><p class=3D"MsoNormal"><a href=3D"https://www.facebook.com/EmilysE=
ntourage" target=3D"_blank"><span style=3D"font-size:9.5pt;font-family:&quo=
t;Arial&quot;,sans-serif;color:#1155CC">Facebook</span></a><span style=3D"f=
ont-size:9.5pt;font-family:&quot;Arial&quot;,sans-serif;color:#351C75">&nbs=
p;|&nbsp;</span><a href=3D"https://www.instagram.com/EmilysEntourage" targe=
t=3D"_blank"><span style=3D"font-size:9.5pt;font-family:&quot;Arial&quot;,s=
ans-serif;color:#1155CC">Instagram</span></a><span style=3D"font-size:9.5pt=
;font-family:&quot;Arial&quot;,sans-serif;color:#351C75">&nbsp;|&nbsp;</spa=
n><a href=3D"https://twitter.com/EmilysEntourage" target=3D"_blank"><span s=
tyle=3D"font-size:9.5pt;font-family:&quot;Arial&quot;,sans-serif;color:#115=
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ily:&quot;Arial&quot;,sans-serif;color:#351C75">&nbsp;|&nbsp;</span><a href=
=3D"https://www.linkedin.com/company/5019145" target=3D"_blank"><span style=
=3D"font-size:9.5pt;font-family:&quot;Arial&quot;,sans-serif;color:#1155CC"=
>LinkedIn</span></a><span style=3D"font-size:9.5pt;font-family:&quot;Arial&=
quot;,sans-serif;color:#351C75">&nbsp;</span><span style=3D"color:#888888">=
&nbsp;</span><o:p></o:p></p></div><div><p class=3D"MsoNormal"><span style=
=3D"font-family:&quot;Arial&quot;,sans-serif;color:#351C75"><a href=3D"http=
s://www.emilysentourage.org/eeupdates/" target=3D"_blank"><span style=3D"co=
lor:#1155CC">Subscribe to EE Newsletter</span></a></span><o:p></o:p></p></d=
iv><div><p class=3D"MsoNormal"><a href=3D"https://www.youtube.com/watch?v=
=3DgAQGumKOrlc" target=3D"_blank"><span style=3D"font-family:&quot;Arial&qu=
ot;,sans-serif;color:#1155CC">Watch the 2023 EE Video</span></a><o:p></o:p>=
</p></div><div><p class=3D"MsoNormal"><o:p>&nbsp;</o:p></p></div><div><p cl=
ass=3D"MsoNormal"><i><span style=3D"font-size:9.5pt;font-family:&quot;Arial=
&quot;,sans-serif">No goods or services provided.&nbsp;&nbsp;Contributions =
are tax-deductible to the full extent of the law (Tax ID #45-3768161)</span=
></i><o:p></o:p></p></div></div></div></div></div></blockquote></div><div><=
p class=3D"MsoNormal"><br clear=3D"all"><o:p></o:p></p></div><div><p class=
=3D"MsoNormal"><o:p>&nbsp;</o:p></p></div><p class=3D"MsoNormal"><span clas=
s=3D"gmailsignatureprefix">-- </span><o:p></o:p></p><div><div><p class=3D"M=
soNormal"><span style=3D"border:solid windowtext 1.0pt;padding:0in"><img bo=
rder=3D"0" width=3D"420" height=3D"109" style=3D"width:4.375in;height:1.135=
4in" id=3D"_x0000_i1026" src=3D"cid:~WRD0002.jpg" alt=3D"Image removed by s=
ender."></span><o:p></o:p></p><div><div><p class=3D"MsoNormal"><b><i><span =
style=3D"color:#351C75">Fast Breakthroughs for Cystic Fibrosis!</span></i><=
/b><o:p></o:p></p></div><div><p class=3D"MsoNormal"><o:p>&nbsp;</o:p></p></=
div><div><p class=3D"MsoNormal"><b><span style=3D"font-family:&quot;Arial&q=
uot;,sans-serif;color:#351C75"><a href=3D"https://www.emilysentourage.org/"=
 target=3D"_blank"><span style=3D"color:#1155CC">www.EmilysEntourage.org</s=
pan></a></span></b><o:p></o:p></p></div><div><p class=3D"MsoNormal"><a href=
=3D"https://www.facebook.com/EmilysEntourage" target=3D"_blank"><span style=
=3D"font-size:9.5pt;font-family:&quot;Arial&quot;,sans-serif;color:#1155CC"=
>Facebook</span></a><span style=3D"font-size:9.5pt;font-family:&quot;Arial&=
quot;,sans-serif;color:#351C75">&nbsp;|&nbsp;</span><a href=3D"https://www.=
instagram.com/EmilysEntourage" target=3D"_blank"><span style=3D"font-size:9=
.5pt;font-family:&quot;Arial&quot;,sans-serif;color:#1155CC">Instagram</spa=
n></a><span style=3D"font-size:9.5pt;font-family:&quot;Arial&quot;,sans-ser=
if;color:#351C75">&nbsp;|&nbsp;</span><a href=3D"https://twitter.com/Emilys=
Entourage" target=3D"_blank"><span style=3D"font-size:9.5pt;font-family:&qu=
ot;Arial&quot;,sans-serif;color:#1155CC">X (formerly Twitter)</span></a><sp=
an style=3D"font-size:9.5pt;font-family:&quot;Arial&quot;,sans-serif;color:=
#351C75">&nbsp;|&nbsp;</span><a href=3D"https://www.linkedin.com/company/50=
19145" target=3D"_blank"><span style=3D"font-size:9.5pt;font-family:&quot;A=
rial&quot;,sans-serif;color:#1155CC">LinkedIn</span></a><span style=3D"font=
-size:9.5pt;font-family:&quot;Arial&quot;,sans-serif;color:#351C75">&nbsp;<=
/span><span style=3D"color:#888888">&nbsp;</span><o:p></o:p></p></div><div>=
<p class=3D"MsoNormal"><span style=3D"font-family:&quot;Arial&quot;,sans-se=
rif;color:#351C75"><a href=3D"https://www.emilysentourage.org/eeupdates/" t=
arget=3D"_blank"><span style=3D"color:#1155CC">Subscribe to EE Newsletter</=
span></a></span><o:p></o:p></p></div><div><p class=3D"MsoNormal"><a href=3D=
"https://www.youtube.com/watch?v=3DgAQGumKOrlc" target=3D"_blank"><span sty=
le=3D"font-family:&quot;Arial&quot;,sans-serif;color:#1155CC">Watch the 202=
3 EE Video</span></a><o:p></o:p></p></div><div><p class=3D"MsoNormal"><o:p>=
&nbsp;</o:p></p></div><div><p class=3D"MsoNormal"><i><span style=3D"font-si=
ze:9.5pt;font-family:&quot;Arial&quot;,sans-serif">No goods or services pro=
vided.&nbsp;&nbsp;Contributions are tax-deductible to the full extent of th=
e law (Tax ID #45-3768161)</span></i><o:p></o:p></p></div></div></div></div=
></div></blockquote></div><div><p class=3D"MsoNormal"><br clear=3D"all"><o:=
p></o:p></p></div><div><p class=3D"MsoNormal"><o:p>&nbsp;</o:p></p></div><p=
 class=3D"MsoNormal"><span class=3D"gmailsignatureprefix">-- </span><o:p></=
o:p></p><div><div><p class=3D"MsoNormal"><span style=3D"border:solid window=
text 1.0pt;padding:0in"><img border=3D"0" width=3D"420" height=3D"109" styl=
e=3D"width:4.375in;height:1.1354in" id=3D"_x0000_i1025" src=3D"cid:~WRD0002=
.jpg" alt=3D"Image removed by sender."></span><o:p></o:p></p><div><div><p c=
lass=3D"MsoNormal"><b><i><span style=3D"color:#351C75">Fast Breakthroughs f=
or Cystic Fibrosis!</span></i></b><o:p></o:p></p></div><div><p class=3D"Mso=
Normal"><o:p>&nbsp;</o:p></p></div><div><p class=3D"MsoNormal"><b><span sty=
le=3D"font-family:&quot;Arial&quot;,sans-serif;color:#351C75"><a href=3D"ht=
tps://www.emilysentourage.org/" target=3D"_blank"><span style=3D"color:#115=
5CC">www.EmilysEntourage.org</span></a></span></b><o:p></o:p></p></div><div=
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font-size:9.5pt;font-family:&quot;Arial&quot;,sans-serif;color:#1155CC">X (=
formerly Twitter)</span></a><span style=3D"font-size:9.5pt;font-family:&quo=
t;Arial&quot;,sans-serif;color:#351C75">&nbsp;|&nbsp;</span><a href=3D"http=
s://www.linkedin.com/company/5019145" target=3D"_blank"><span style=3D"font=
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n</span></a><span style=3D"font-size:9.5pt;font-family:&quot;Arial&quot;,sa=
ns-serif;color:#351C75">&nbsp;</span><span style=3D"color:#888888">&nbsp;</=
span><o:p></o:p></p></div><div><p class=3D"MsoNormal"><span style=3D"font-f=
amily:&quot;Arial&quot;,sans-serif;color:#351C75"><a href=3D"https://www.em=
ilysentourage.org/eeupdates/" target=3D"_blank"><span style=3D"color:#1155C=
C">Subscribe to EE Newsletter</span></a></span><o:p></o:p></p></div><div><p=
 class=3D"MsoNormal"><a href=3D"https://www.youtube.com/watch?v=3DgAQGumKOr=
lc" target=3D"_blank"><span style=3D"font-family:&quot;Arial&quot;,sans-ser=
if;color:#1155CC">Watch the 2023 EE Video</span></a><o:p></o:p></p></div><d=
iv><p class=3D"MsoNormal"><o:p>&nbsp;</o:p></p></div><div><p class=3D"MsoNo=
rmal"><i><span style=3D"font-size:9.5pt;font-family:&quot;Arial&quot;,sans-=
serif">No goods or services provided.&nbsp;&nbsp;Contributions are tax-dedu=
ctible to the full extent of the law (Tax ID #45-3768161)</span></i><o:p></=
o:p></p></div></div></div></div></div></body></html>
